Latest News

FCDGC Announces 2023 Pilot & Feasibility Project Awardee and Career Enhancement Fellow

The Frontiers in Congenital Disorders of Glycosylation Consortium FCDGC) has named Aryal Rajindra as their 2023 Pilot & Feasibility Project Awardee and Idris Wazeerud-din as their Career Enhancement Fellow.

A photo of Aryal Rajindra and Idris Wazeerud-din.

Congenital Disorders of Glycosylation Over Time: What We’re Learning from a Natural History Study

March 22, 2023

Rare Research Report: August 2022

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Patient Advocate Spotlight: Andrea Miller Creates Global Connections for Congenital Disorders of Glycosylation

July 7, 2022

Andrea and her daughter, Bianca, celebrating World CDG Awareness Day

RDCRN Research Roundup: July 2022

July 6, 2022

Patient Spotlight: Franklin and List Families Navigate Life with Congenital Disorder of Glycosylation

June 30, 2022

The Franklin family at a playground, and Dee List wearing a graduation cap

Senior Researcher Spotlight: Kent Lai Develops Gene-Based Therapeutics for Congenital Disorders of Glycosylation

June 21, 2022

Kent Lai, PhD, sitting in a chair in his lab

Rare Research Report: December 2022

December 5, 2022

Early Stage Investigator Spotlight: Steven Sloan Develops Brain Organoids to Study Congenital Disorders of Glycosylation

June 14, 2022