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Past Events

Lectures from the 2020 SBP Rare Disease Day Symposium & CDG Family Conference

Dr. Melissa Merideth . Reproductive Health Issues in Females with CDG

Dr. Melissa Merideth · Reproductive Health Issues in Females with CDG

Dr. Canice Crerand · Navigating Adolescence with CDG: Behavioral & Transition Needs

Dr. Christina Lam · CDG Genetics and Introduction to Gene Therapy

Dr. Hudson Freeze · CDG Updates and Perspectives

Dr. Andrew Edmondson · Models for CDG Research

Dr. Eva Morava-Kozicz · CDG Studies, Treatments and Future Therapies

Lynne Wolfe · Updates from the NIH CDG Natural History Study

Dr. Martinez Duncker · Summary of CDG Cases & Physician/Research Network in Latin America

Carlota Pascoal · CDG & Allies – PPAIN: The CDG Immunology Project

Karyn Searcy · Beyond the Diagnostic Label

Becki Cohill & Leah Foreman · Caring for the Caregiver

Philip Lindsley · Special Needs Trusts & Estate Planning