Leading research to improve the lives of individuals with congenital disorders of glycosylation
Join One of Our Research Studies
Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by Congenital Disorders of Glycosylation (CDG).
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$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network
Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.
Rare Research Report: July 2025
Each month, we share summaries of recent Rare Diseases Clinical Research Network grant-funded publications. Catch up on RDCRN research for July 2025.
Pre-Doc Preparatory Program (P³) in Translational Research
Do you have a rare disease research coordinator, genetic counseling assistant, or technician who may benefit from formal training in clinical and translational research?
