Patient Advocacy Groups

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Amour Fund

Funds research for congenital disorders of glycosylation (CDG), advocates for screening, raises awareness, and assists families.

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CDG & Allies - PPAIN

A patient-led infrastructure for research, awareness, and education for Congenital Disorders of Glycosylation.

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CDG Canada

Connects patients and families affected by congenital disorders of glycosylation (CDG) to clinicians and researchers in Canada and globally.

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CDG CARE (Community Alliance and Resource Exchange)

Promotes awareness of congenital disorders of glycosylation (CDG) and NGLY1-deficiency, provides resources, and funds scientific research.