Latest News

A Warm Welcome to Hamdan Alshahrani, MD, Our Newest Research Fellow

The Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC) is pleased to welcome our newest research fellow, Hamdan Alshahrani, MD.

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Congenital Disorders of Glycosylation Over Time: What We’re Learning from a Natural History Study

March 22, 2023

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Congenital Disorders of Glycosylation Over Time: What We’re Learning from a Natural History Study

Rare Research Report: November 2023

November 14, 2023

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Rare Research Report: October 2023

October 17, 2023

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Patient Spotlight: Franklin and List Families Navigate Life with Congenital Disorder of Glycosylation

June 30, 2022

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The Franklin family at a playground, and Dee List wearing a graduation cap

Senior Researcher Spotlight: Kent Lai Develops Gene-Based Therapeutics for Congenital Disorders of Glycosylation

June 21, 2022

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Kent Lai, PhD, sitting in a chair in his lab

Rare Research Report: December 2022

December 5, 2022

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Early Stage Investigator Spotlight: Steven Sloan Develops Brain Organoids to Study Congenital Disorders of Glycosylation

June 14, 2022

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Training Program for Clinical Research in Rare Disease Launches New Session

November 9, 2022

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Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant