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Leading research to improve the lives of individuals with congenital disorders of glycosylation

 

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Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by Congenital Disorders of Glycosylation (CDG).

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NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).

Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

A Warm Welcome to Hamdan Alshahrani, MD, Our Newest Research Fellow

The Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC) is pleased to welcome our newest research fellow, Hamdan Alshahrani, MD.

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A photo of Hamdan Al-Shahrani.