Leading research to improve the lives of individuals with congenital disorders of glycosylation
![A doctors smiles while speaking to a patient who is a child](/sites/default/files/styles/large/public/2022-06/FCDGC_Images_Homepage_Research-Studies_shutterstock_1054597460.jpg?itok=UNIukp7F)
Join One of Our Research Studies
Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by Congenital Disorders of Glycosylation (CDG).
Find a StudyRare Research Report: May 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
![Rare Research Report logo](https://www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)
Rare Research Report: April 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
![Rare Research Report logo](https://www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)
National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.
![Flyer advertising the survey appearing on a laptop screen.](https://www.rarediseasesnetwork.org/sites/default/files/2024-02/RDPatientSurvey_image.jpg)