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Leading research to improve the lives of individuals with congenital disorders of glycosylation

 

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Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by Congenital Disorders of Glycosylation (CDG).

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Congenital Disorders of Glycosylation Over Time: What We’re Learning from a Natural History Study

To learn more about the development and outcomes of congenital disorders of glycosylation (CDG), the Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC) is conducting a natural history study, “Clinical and Basic Investigations into CDG.” The team is exploring the progression of CDG, clinical symptoms, and how they vary among different population groups.

Congenital Disorders of Glycosylation Over Time: What We’re Learning from a Natural History Study

Rare Research Report: December 2022

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research. 

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