Leading research to improve the lives of individuals with congenital disorders of glycosylation
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Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by Congenital Disorders of Glycosylation (CDG).
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Congenital Disorders of Glycosylation Over Time: What We’re Learning from a Natural History Study
To learn more about the development and outcomes of congenital disorders of glycosylation (CDG), the Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC) is conducting a natural history study, “Clinical and Basic Investigations into CDG.” The team is exploring the progression of CDG, clinical symptoms, and how they vary among different population groups.
Rare Research Report: December 2022
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research.
Training Program for Clinical Research in Rare Disease Launches New Session
The National Institutes of Health-funded R25 Rare Disease Clinical Research Training Program is launching a new training program for clinical research in rare disease. Now in its seventh year, this year-long, hybrid, free program is designed to support new investigators in the field of rare disease clinical research.
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