Latest News

A Warm Welcome to Hamdan Alshahrani, MD, Our Newest Research Fellow

The Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC) is pleased to welcome our newest research fellow, Hamdan Alshahrani, MD.

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Join the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025

January 28, 2025

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FDA-NIH Rare Disease Day. February 27-28, 2025

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16, 2024

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Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13, 2024

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Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Twenty Years of the Rare Diseases Clinical Research Network: Looking Back, Looking Ahead

January 29, 2024

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Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.

Rare Research Report: December 2024

December 18, 2024

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Rare Research Report: November 2024

November 26, 2024

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Rare Research Report: August 2024

August 26, 2024

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Rare Research Report: May 2024

May 29, 2024

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