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Leading research to improve the lives of individuals with congenital disorders of glycosylation

 

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Join One of Our Research Studies

Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by Congenital Disorders of Glycosylation (CDG).

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Rare Research Report: August 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Rare Research Report: May 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Rare Research Report: April 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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