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Leading research to improve the lives of individuals with congenital disorders of glycosylation

 

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Join One of Our Research Studies

Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by Congenital Disorders of Glycosylation (CDG).

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Join the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025

Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on February 27-28, 2025.

FDA-NIH Rare Disease Day. February 27-28, 2025

Rare Research Report: December 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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Rare Research Report: November 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.

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