Leading research to improve the lives of individuals with congenital disorders of glycosylation
Join One of Our Research Studies
Participants make it possible for researchers to find new treatments, speed diagnosis, and improve the lives of those affected by Congenital Disorders of Glycosylation (CDG).
Find a StudyJoin the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025
Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on February 27-28, 2025.
Rare Research Report: December 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
Rare Research Report: November 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.