Leading research to improve the lives of individuals with congenital disorders of glycosylation
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NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups
The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).
A Warm Welcome to Hamdan Alshahrani, MD, Our Newest Research Fellow
The Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC) is pleased to welcome our newest research fellow, Hamdan Alshahrani, MD.
Patient Advocate Spotlight: Andrea Miller Creates Global Connections for Congenital Disorders of Glycosylation
Andrea Miller, JD, MHA, is the founder and president of CDG CARE (Community Alliance and Resource Exchange), a patient advocacy group that supports individuals and families affected by congenital disorders of glycosylation (CDG). CDG is a large group of rare, inherited disorders that affect a complex process in the body called glycosylation. Here, she shares her journey to rare disease advocacy, impactful work by CDG CARE, and collaboration with the Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC).
